Illinois
AFFTER
Advocates for Fibromyalgia
Funding, Treatment, Education and Research
Shari Ferbert, President
847-362-7807
PO Box 768
Libertyville, IL 60048-0768
Fax: 847-680-3922
email: info < at > affter.org
www.affter.org
(also, look up support
groups in Rantoul and Antioch)
Bloomington-Normal
Meets last
Tuesday of the month 6 P.M. No meeting in December.
The Lounge at
first United Methodist Church
211 N. School
Street—Normal
Call Evonne Wurmnest (309) 452-2477
or contact:
Ms. Joyce Kaye
2 Sunshine Court
Bloomington, IL 61704-2342
309-663-0564
Ms. Lisa Schicht
Chronic Fatigue
Syndrome Wellness Group
2502 Myers Court,
Apt. 2
Champaign, IL 61822-6854
217-355-4630
Chronic Fatigue Syndrome,
Fibromyalgia & Multiple Chemical Sensitivity Coalition of Chicago
Barbara Morrison, President
PO Box 277
Wilmette, IL 60091
Ph: 312-409-5363
Fax: 847-920-9166
Email: EditorCCFSA < at > aol.com
or editorcfccc < at > aol.com
Website:
www.CFCCC.net
Newsletter:
Canary Times
Ms. Kathleen Gale
CFCCC Parent
Support Group
Chicago, IL 60630
Contact via CFCCC: (312) 409-5363
Contact and
support group for parents/family that have children with CFIDS.
The
Chronic Fatigue Syndrome Society of Illinois (CFSSI)
Ronald
G. Gilbert, D.D.S.
PO Box 5102
Skokie, IL 60076
Voice: 312-372-0888
Web: http://members.aol.com/cfssi/
Email: cfssi < at > aol.com
CFS/FM Support
Group of Bloomington/Normal
The Lounge at
First United Methodist Church
211 N. School
Street
Normal, IL 61761
Ms. Evonne B.
Wurmnest
309-452-2477
Parental Support
Parents
Anonymous® of Chicago, Illinois
(773)
429-0300
Wisconsin
Appleton/Fox
Cities Support Group
Ms. Geraldine
Baumgart
1228 West 8th
Street
Appleton, WI 54914
920-731-2697
Barron County
Support Group Fibromyalgia / CFIDS/ Chronic Pain
Meets every 2nd & 4th
Thursday of every month
from 1pm to 3pm at the Rice
Lake, WI. City Hall
Ms. Sally Borden,
contact person
715-924-4904
Ms. Ruth E. Clark
786 Inman Parkway
Beloit, WI 53511-1742
608-362-1665
Wisconsin First Step Hotline
Provides
statewide information and referrals to assist professionals and families who
have children with special needs. 24 hour services.
1910 South Avenue
La Crosse, WI 54601
www.mch-hotlines.org
or call the toll-free: 800-642-7837 Voice/TTY.
Mr. John Brian
Paprock
CFIDS Support and
Information
Madison, WI
608-236-9622
Ms. Susan Sweet
327 North 2nd
Street
Medford, WI 54451-1468
715-748-6587
Wisconsin CFS Association
747 Lois Drive
Sun Prairie, WI 53590
608-834-1001
www.wicfs-me.org
Ms. Judy O'Connor
1905 Centennial
Lane
Racine, WI 53406
262-886-1277
Ms. Lois Menninga
1075 County Road
E
Rewey, WI 53580
608-943-8028
Ms. Pat Fero
WI Support
Information for Kids
1408 Coral Drive
Sun Prairie, WI 53590-1921
608-837-9540
work ph:
608-834-1001
Indiana
South Central Indiana
Fibromyalgia Support Group
1221 Shadeland Drive
Bloomington, Indiana 47403
(812) 333-1843
We meet the second Wednesday
of every month at 6:30 at the Monroe County Public Library. Contact person
is Chris Woods, a public health educator who has fibromyalgia and has spent 7
years researching and helping others learn about this syndrome.
Janet and Blythe
Battram
Indiana CFS/FM Association-Evansville Chapter
520 East Mill
Road
Evansville, IN 47711-2240
812-425-4815
Ms. Jyoti Hansa
(group is defunct, but will share info)
1064 West 37th
Street
Indianapolis, IN 46208-4138
317-925-6122
Eldon and
Patricia Haden
CFS/FMS Support
Group
10399 Douglas
Road
Osceola, IN 46561-9436
219-679-4881
Ms. Roxanne
McCreary
Living Well with
Fibromyalgia
Health South
Rehabilitation
501 East St.
Anthony Drive
Terre Haute, IN 47804
812-238-0897
Meets every 3rd
Saturday of the month from 1
PM to 3 PM.
Iowa
Webster County Fibromyalgia, Chronic Fatigue,
and Immune Deficiency Support Group
When: 1st and 3rd Monday of
each month.
Time: 1:30 p.m.
Phone: (515) 955-7195 ask for
Deb.
Lakeview Medical Park
6000 University Ave
West Des Moines, Iowa
When: 3rd Thursday of each
month, except December.
Time: 7:00 p.m.
Where: 1st floor conference room
Phone: (515) 263-5184 This
number is for hospital information.
Support Groups
for Other Invisible Illnesses:
American Academy of Ophthalmology’s Eye Care America –
National Eye Care Project (NECP)
A program that
provides eye care for Medicare beneficiaries who have diabetes and who have not
had a medical eye exam in the last three years. In coordination with the
Health Care and Financing Administration (HCFA) and the American Optometric
Association (AOA).
NECP:
800-222-EYES (800-222-3937)
AOA’s Diabetes
Hot Line: 800- 262-3947
American Diabetes Association
ATTN: Customer Service
1701 North Beauregard
Street
Alexandria, VA 22311
Ph: 800-342-2383
Email: customerservice < at > diabetes.org
Website: www.diabetes.org
American
Diabetes Association
Northern Illinois Area
Supports a
variety of diabetes research, information, and advocacy programs. Provides
educational programs and support groups, camps for children, teens, and weekend
retreats for teens and families.
In Northern Illinois and Northwest Indiana
contact:
American Diabetes
Association
6 North Michigan
Avenue - Suite 1202
Chicago, IL 60602
Ph: 312-346-1805,
888-342-2383
Fax: 312-346-5342
Website: www.diabetes.org
Arthritis Foundation: Greater Chicago Chapter
29 East Madison
Suite 500
Chicago, IL 60602
312-372-2080
info.gc < at > arthritis.org
http://ww2.arthritis.org/Communities/Chapters/Chapter.asp?chapid=11
Celiac Disease Foundation
13251 Ventura
Blvd., No. 1
Studio City, CA 91604-1838
Ph: 818-990-2354
Fax: 818-990-2379
Email: cdf < at > celiac.org
Website: http://www.celiac.org
Fibromyalgia
Aware
National
Fibromyalgia Association (NFA)
Lynne Matallana, President
2121 S. Towne Centre Place,
Suite 300
Anaheim, CA 92806
Phone: (714) 921-0150
Fax: (714) 921-6920
www.fmaware.org
Gluten Intolerance Group of North America
31214 124th Ave
SE
Auburn WA 98092-3667
Phone: 253-833-6655
Fax: 253-833-6675
Email: info < at > gluten.net
Website: http://www.gluten.net
Joslin Diabetes Center
Provides a wide
variety of books, videotapes and other educational materials on diabetes for
adults and children.
One Joslin Place
Boston, MA 02215
Ph: 617-732-2400,
1-800-344-4501 (to order books)
Website: www.joslin.org
Lupus Foundation Of Illinois
20 E. Jackson Boulevard,
Suite 1150
Chicago, IL 60604
312-542-0002
Fax: 312-542-0003
info < at > lupusil.org
http://www.lupusil.org/
National Multiple
Sclerosis Society
Chicago & Greater Illinois
Chapter
Referrals to diagnostic and
medical exams, social service and therapy.
Monthly newsletter and
meetings.
910 W Van Buren
St # 4
Chicago, IL 60607
(312) 421-4500
National
Groups
American Gulf War Veteran's Association
3506 Highway 6 South #117
Sugarland,TX 77478-4401
1-800-231-7631 281-438-1699
(Fax) 281-438-4581
http://www.gulfwarvets.com/
The CFIDS Association of
America, Inc.
PO Box 220398
Charlotte, NC 28222-0398
Resource Line: 704-365-2343
Newsletter: CFIDSLink
Chemical Injury
Information Network
P.O. Box 301
White Sulphur Springs, MT 59645
406-547-2255
Fax:
406-547-2455
web site: http://ciin.org/
Cynthia Wilson, Executive
Director
Publish the newsletter Our
Toxic Times.
Ecological Health
Organization (ECHO)
PO Box 8232
Berlin, Connecticut 06037
570-472-0374
ECHOMCSCT < at > aol.com
http://www.ECHOMCSCT.homestead.com
The Environmental Health
Network (EHN)
PO Box 1155
Larkspur, CA 94977-1155
voicemail/support and info
line: (415) 541-5075
website: http://www.ehnca.org
Environmental Research
Foundation
Peter Montague, Ph.D.
PO Box 160
New Brunswick, NJ 08903-0160
732-828-9995
fax: 732-791-4603
e-mail: erf < at > rachel.org
website: www.rachel.org
newsletter: Rachel's
Environment & Health News
Fibromyalgia
Network
P.O. Box 31750
Tucson, AZ 85751-1750
520-290-5508
800-853-2929
website:
www.FMnetnews.com
HealthCare Without Harm
Mission: To transform the health care industry worldwide,
without compromising patient safety or care, so that it is ecologically
sustainable and no longer a source of harm to public health and the
environment.
HCWH Membership Services
1901 N. Moore Street
Suite 509
Arlington, VA 22209
ph: 703-243-0056
fax: 866-438-5769
Colleen Funkhouser
cfunkhouser < at > hcwh.org
website:
www.noharm.org
The
Human Ecology Action League, Inc. (HEAL)
Gathers and
provides information; publishes quarterly magazine, The Human Ecologist.
P.O. Box 29629
Atlanta, GA 30359-0629
Ph: 404-248-1898
Fax: 404-248-0162
Email: HEALNatnl < at > aol.com
Website: http://members.aol.com/HEALNatnl/
MCS Information Exchange
Alison Johnson
P.O. Box 213
Brunswick, ME 04011
207-725-8570
email: alisonjmcs < at > aol.com
alisonjohnsonmcs.com
MCS Referral &
Resources
508 Westgate Road
Baltimore, MD 21229-2343
410-889-6666
e-mail: adonnay < at > mcsrr.org
web page: http://www.mcsrr.org/
National Center for Environmental Health Strategies (NCEHS)
1100 Rural Ave. Vorhees, NJ 08043
856-429-5358
mary < at > mcehs.org
http://www.ncehs.org/
(website currently down, 8/07)
Mary Lamielle, Director
National Coalition For The
Chemically Injured (NCCI)
Lawrence Plumlee, MD
5717 Beech Ave.
Bethesda, MD 20817-2563
Phone/FAX: 301-897-9614
laplumlee < at > pol.net
www.rtknet.org/ncci
The National
Forum: Quarterly
publication on CFIDS/ME, FMS, GWI, MCS, and related illness. Subscription is
included with $25 annual membership donation to The National CFIDS Foundation.
National CFIDS
Foundation
103 Aletha Road
Needham, MA 02492-3931
781-449-3535
FAX: 781-449-8606
E-mail: info < at > ncf-net.org
http://www.ncf-net.org/forum.htm
Through the Looking Glass
National resource
center for parents with disabilities: provides newsletter, video library,
support groups, research conferences, publications, also provides home-based
services to families with disability and medical issues.
2198 Sixth Street – Suite 100
Berkeley, CA 94710
Ph: 800-644-2666
(Voice), 800-804-1616 (TTY), 510-848-1112
Fax: 510-848-4445
Email: tig < at > lookingglass.org
Website: http://www.lookingglass.org