CFCCC Resource Guide |
Advocacy
American Fibromyalgia Syndrome Association, Inc.
A nonprofit organization which raises funds for research into Fibromyalgia Syndrome (FMS), Chronic Fatigue Syndrome (CFS), and related conditions.
6380 E. Tanque Verde Rd., Suite D Tucson, AZ 85715 Ph: 520-733-1570 Website: http://www.afsafund.org
Chronic Fatigue Syndrome, Fibromyalgia & Multiple Chemical Sensitivity Coalition of Chicago
Serves persons with Chronic Fatigue Syndrome, Fibromyalgia, and other related disorders in the greater Chicago metropolitan area as well as surrounding states. Offers referrals, phone friends, lending library, support groups, newsletter, and resource directory.
President: Barbara Morrison PO Box 277 Wilmette, IL 60091 Ph: 312-409-5363 Fax: 847-920-9166 Email: EditorCCFSA < at > aol.com or editorcfccc < at > aol.com Website: www.CFCCC.net Newsletter: Canary Times
The Chronic Fatigue and Immune Dysfunction Syndrome Association of America (CFIDS Association of America)
PO Box 220398 Charlotte, NC 28222-0398 Ph: 800-442-3437 (voice mail), 704-365-2343 (resource line) Fax: 704-365-9755 Email: cfids < at > cfids.org Website: www.cfids.org CFIDS in Youth website: http://www.cfids.org/youth.asp
See also the CFIDS Provider Education Project (supported by the CDC) for fact sheets, disability and assessment tools, resources and much more at: http://www.cfids.org/treatcfs/
Coalition of Citizens with Disabilities in Illinois (CCDI)
A statewide non-profit advocacy organization. Dedicated to “providing a united voice for the rights and equality of individuals with disabilities in Illinois.”
Springfield
Office (Voice/TTY): 800-433-8848 (Voice/TTY) 217-522-7016 Fax: 217-522-7024 Website: www.ccdionline.org
Council for Disability Rights
Provides public education, information, referrals, counseling, job training, and many other services to the disabled community. Monthly publish CDR Reports.
30 East Adams, Suite 1130 Chicago, IL 60603 Ph: 312 444-9484 (Voice), 312 444-1967 (TTY) Fax: 312 444-1977 Email: cdrights < at > interaccess.com Email: contactus < at > equipforequality.org
Website: http://www.disabilityrights.org
Equip for Equality
Advancing the human and civil rights of people with physical and mental disabilities in Illinois. A comprehensive statewide advocacy organization providing self-advocacy assistance, legal services, education, public policy advocacy and systems monitoring.
Chicago: 20 North Michigan Avenue, Suite 300
Northwestern Illinois1617 Second Avenue
Central Illinois235 South Fifth Street
Fibromyalgia Network
PO Box 31750 Tucson, AZ 85751-1750 Ph: 800-853-2929 Website: http://www.fmnetnews.com/
I Remember Me, a film written, directed, produced and acted by Kim Synder. A dramatic telling of a person living with CFS. Given *** by Roger Ebert.
Available at Zeitgeist Films 212-274-1989 or Amazon.com
The International Association for CFS/ME 27 N. Wacker Drive Suite 416 Chicago, IL 60606 Voice Mail: 847-258-7248 Fax: 847-579-0975 www.aacfs.org/ Admin < at > iacfs.net
The mission of the IACFS/ME is to promote, stimulate and coordinate the exchange of ideas related to CFS, ME and fibromyalgia (FM) research, patient care and treatment.
National CFIDS Foundation103 Althea Road Needham, MA 02492 Ph: 781-449-3535 Fax: 781-449-8606 Email: info < at > ncf-net.org Website: http://www.ncf-net.org/
National Organization for Rare Disorders, Inc.
Working toward the prevention, treatment, and cure of rare "orphan" diseases.
Ph: 203-744-0100, 800-999-6673 (voicemail only) Fax: 203-798-2291 Email: orphan < at > rarediseases.org Website: http://www.rarediseases.org/
OWL Illinois
The Older Women's League (OWL) is open to anyone of any age. It presents programs on issues of interest to midlife and older women, and advocates for policy changes on the state and national level. A good resource for Medicare recipients of any age. Call the office for local chapters.
OWL (Illinois)
OWL (National)
Website: http://owlill.wnkcommunity.com/index.html Patient Advocate Foundation
Serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis of chronic, debilitating or life-threatening diseases.
Inquiries at their 800 number are handled by a case manager, who will ask for name, number, and info and calls back within 24-48 hours.
700 Thimble Shoals Blvd, Suite 200, Newport News, VA 23606 Ph: 800-532-5274 Fax: 757-873-8999 Email: help < at > patientadvocate.org Website: http://www.patientadvocate.org/
People’s Medical Society
The largest medical consumer advocacy organization in the United States, educating patients about health care and medical rights.
P.O. Box 868 e-mail: cbi < at > peoplesmed.org Website: http://www.peoplesmed.org
ProHealth's ImmuneSupport.com Fibromyalgia & Chronic Fatigue Syndrome Website Email US or Call US at 1-800-366-6056 Monday-Friday, 7 a.m.-5 p.m. PST International Callers can reach us at 001.805.564.3064 www.immunesupport.com/library/showarticle.cfm/ID/4890
Public Citizen Public Citizen is a national, nonprofit consumer advocacy organization founded in 1971 to represent consumer interests in Congress, the executive branch and the courts.1600 20th Street,
NW
Rainbow House/Arco Iris
Non-profit organization working to end domestic violence. Its mission is to provide outreach and violence prevention services to individuals, families and communities and to be effective public policy advocates for systemic change that reduces the prevalence and impact of domestic violence.
Little Village
Outreach Ph: 773-521-1815, 312-461-0462 (TTY) Website: http://www.rainbow-house.org
Sjogren’s Syndrome Foundation
Members receive ‘The Moisture Seekers’ newsletter; discounts on educational materials and Foundation-sponsored seminars and conferences; a network of volunteer contact people, groups and chapters that provide support. Sjögren's
Syndrome Foundation Toll Free: (800) 475-6473 Email: tms < at > sjogrens.org Website: www.sjogrens.org
Women’s Advocacy: Northwestern University The Women's Center serves as a gathering place for women students, staff, and faculty across lines of race, class, and sexual orientation. It is a safe haven where NU women connect, as well as an environment suited to enrich personal, professional and academic lives. The Center conducts outreach, educational programming, coalition building, advocacy, counseling and resource referral, with the goal of gender equity always imperative.
2000 Sheridan Rd. Evanston, IL 60208 847-491-7360503-1400
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